Scientist Ron Davis Is Fighting to Cure His Son's Chronic Fatigue Syndrome: 'It's Like a Living Death'
Thirty minutes into a Zoom interview about their years-long battle to keep their sonWhitney Dafoealive,Janet Dafoeshoots her husbandRon Davisan anxious glance. Whitney, 37, suffers from a severe case of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) — an incurable disease that can leave its victims in a state of crippling fatigue and exhaustion. It’s been 12 hours since Whitney, who is bedridden and dependent on a feeding tube, last rang the tiny bell he uses to summon his parents when he needs something — and Janet, 71, can’t help but worry....